| This is about me, a person who has lived
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| | drummer, blowing in and out saying, "move
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| with a disease. I am a person who had a
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| | people, breathe people" that was Susan?s
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| dream of realizing self-potential yet,
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| | greatest motto. I moved by walking and
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| had to accept not physically being able
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| | breathed deep, sucking breath until my
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| to manifest this dream.As I stated in an
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| | stomach hugged my spine. The first week I
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| earlier article, Sjogrens is an
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| | began walking around the block, a week
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| autoimmune disease, a connective tissue
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| | later two blocks eventually, I was
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| disease. The medical community has not
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| | walking 3 miles a day. I had reached the
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| found a cure.I had never heard of
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| | stage of power walking. I would walk hard
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| Sjogrens Syndrome until April of 2004
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| | and fast, swinging my hips left to right,
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| when death came to visit and tried to
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| | like hooker-hips at a washing machine
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| take me back with it.Most of us are
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| | pace. I pumped my arms like a track star
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| familiar with the high profile diseases
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| | going for the gold.After a while instead
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| -- MS, Rheumatoid Arthritis, and Lupus
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| | of getting stronger and having more
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| etc. Let me preface this story by saying
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| | energy, my body grew weak and more tired
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| I am not a doctor, I am not an expert I
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| | each day. I was loosing weight on a
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| am a patient diagnosed with Sjogrens, I
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| | steady pace yet my life force seemed to
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| will call it SJS. Technicality is not my
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| | be dropping along with the unwanted
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| forte and this literary journey is in
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| | pounds.All that breathing deep and heel
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| layman's miles, not always logical, never
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| | to toe pavement work was literally
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| the less just as valuable for those who
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| | killing me. I came down with infection
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| live and feel the effects of this alien
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| | after infection with 104-degree
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| that has invaded our bodies.Are there any
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| | temperatures. Sleeping eight to ten
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| Trekkies out there? SJS, like any other
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| | hours, a night still left me feeling
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| disease is akin to the unrelenting
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| | wrung out like an over used dish-rag. My
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| nemesis the Borg of Star Trek. This
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| | doctor ran every test he could think of
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| autoimmune disease occupies our bodies
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| | finding no results. The only reason he
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| threatening assimilation of different
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| | did not diagnose me as a hypochondriac
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| organs and body systems. At times, I
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| | was that my temperatures were
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| think I can hear it whispering,
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| | consistently high along with other
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| "Resistance is futile".SJS is different
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| | notable symptoms.Sjogrens Syndrome is a
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| in each person that it tries to
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| | symptomatic disease. Doctors will run
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| assimilate. In my case the symptoms are:
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| | test for years and not be able to find
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| aching muscles, debilitating fatigue, dry
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| | the root cause. Frustration then becomes
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| aching eyes, dry mouth, pancreantitus
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| | second nature. It is difficult to stay
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| (which led to diabetes), painful legs and
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| | upbeat when getting out of bed in the
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| feet, neuropathy, and depression. Writing
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| | morning is a chore. When a person has to
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| this is therapeutic, and hopefully, it
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| | sit down while taking a shower or go lie
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| will help those who suffer from the same
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| | down afterwards is not a normal
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| alien, or any other alien for that
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| | circumstance.My quality of life has
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| matter, to not feel so alone.Those of us
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| | suffered over these last twenty years.
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| who suffer from Sjogrens not only must
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| | Being a single Mom with no emotional or
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| live with the disease also must contend
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| | financial support, I had a son to raise,
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| with friends and family who cannot
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| | therefore I had to work, oh yes work! I
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| comprehend what we are going through. We
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| | worked for the U.S. Postal service, which
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| hear them say, "you don?t look sick" or
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| | was no picnic even for a healthy person.
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| "why are you always so tired" or "why are
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| | Being sick all the time and calling off
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| you always sick?" Why, why, why, I am
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| | did not sit well with the job. In
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| sick to death of that question.Earlier in
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| | retrospect, these circumstances would not
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| my life I was a Susan Powter, groupie, I
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| | sit well with any employer.Finally in
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| also tried Weight Watchers and Atkins as
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| | 2004 Sjogrens tricked my body into
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| you can guess by those references I am
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| | attacking itself. I almost died. I spent
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| over weight. My journey will begin in the
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| | 1 week in intensive care and 1 week in a
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| early nineties, if your eyes get tired
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| | regular hospital room. Still, doctors
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| stop reading my story and go put some
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| | could not figure out why my body was
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| artificial tears in your eyes, close them
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| | shutting down.Needless to say, I am alive
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| and rest them. Come back and finish
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| | sitting here writing this story. Sitting
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| reading my story, if you do not, you will
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| | here wondering when and if there will be
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| hurt my feelings and if by some chance
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| | a break through. All I can say and
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| you get bored, read the words any way!In
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| | believe is that we must continue to
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| the summer of 1996, I decided it was time
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| | persevere.Every day doctors are finding
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| to do something about my weight. I bought
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| | out more about this disease and are
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| a book by the newest lose weight guru of
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| | discovering medicines to improve the
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| that time Susan Powter. If I remember
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| | quality of our lives. One day, they may
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| correctly, she had a television exercise
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| | find a cure.If anyone reading this knows
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| show, then again, my memory is not the
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| | of anyone who suffers from this disease
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| best and I could be wrong. I do however
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| | or if you know someone who exhibits the
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| remember following her diet and exercise
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| | symptoms, please be patient and
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| advice. I got up faithfully every morning
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| | understanding. The sufferer is truly
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| took James, that?s my son, to school came
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| | suffering regardless of how they look.For
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| back home to get the dog, here name was
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| | those of you who are suffering from this
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| Mandy, and went for a walk.I remember
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| | or any other disease please take gentle
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| Susan always marching to an invisible
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| | care of yourself.
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