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Living with Chronic Illness & Disorders: Are You a Survivor?

Once upon a time, I was a vibrant, had went through my rehabilitation, my
youthful teenager...My First employer 'let me go' because I was
EncounterDuring my first pregnancy, I had obviously unable to work. I attempted to
contracted chicken pox from my young go back to work as an office manager for
nephews and niece. Though it made for an a wonderful & understanding employer, (I
irritable time in my initial trimester, I figured it was light work.) and performed
hadn't given it much aforethought. In the fairly well for a few months. Suddenly, I
last part of my pregnancy, I noticed some was in a hospital emergency room - this
weakness in my legs and arms, but time, I came out in a wheelchair. Not
naturally assumed it was part of the only did MRI tests confirm I had a
gestational effects.It was after I gave herniated disc at the C-3/4, but I also
birth, that I began having more frequent had a spinal lesion (myelopathy) at the
physical difficulties, but again, C-1/2. Strange that workers compensation
attributed these nuisances to normal doctors coudn't find it, but numerous MRI
post-partum effects. As time progressed, tests this time, confirmed it.After
I began losing balance & coordination; seeing a few, reputable Neurologists, I
and even dropped everyday household items was additionally diagnosed with
such as glasses, keys, and other things Transverse Myelitis (TM) and a 'bulging
as well. I had finally had enough when my disc' (herniated disc). This explained
rib cage began to feel broken and I why I had been encountering all these
couldn't stand the pain any longer. Over unrelated physical problems.Giving UpI
a decade later, and after numerous doctor guess when I first sat in my wheelchair,
visits, MRIs and multiple lab tests; I I instinctively gave in to my physical
was finally diagnosed with condition. Why bother living anymore, I
Fibromyalgia.What is Fibromyalgia? thought. I couldn't function properly and
Fibromyalgia is a chronic pain illness felt like a complete invalid. How was I
that can cause musculoskeletal pain in going to make my household payments? How
various areas of the body, is was I going to care for my two, then
characterized by fatigue, and is often elementary schoolers? How was I even
associated with Restless Leg Syndrome, going to live? While all these thoughts
Migraine and rheumatism - to name a few. ran through my mind, I was becoming an
Additionally, attacks of fibromyalgia emotional wreck.Because of my health, I
seem to spontaneously come and go.At was taking so many medicines that I
first, I was treated with multiple 'pain couldn't tell if I was coming or going. I
aids' that did help with the pain, but would take one medicine for this, one for
made me even more tired than I was before that, one to counteract the effects of
I took the medicines. Eventually, I went another, and another to counteract the
off the medications and focused on my effects of a different one...and so on.
work and simply 'ignored' the illness. I And thanks to all of these wonderful
figured if I had to live with it, I might conventional medicines, I returned to the
as well accept it.What I Didn't KnowWhat hospital because one of them nearly
I didn't realize was that Fibromyalgia killed me. It was then that I knew I had
can weaken a person so much that to find a different way.Starting
sometimes, individuals can be more OverGoing against medical advisement, I
quickly injured or more prone to other literally stopped all of my prescribed
conditions than those without medicines at once. I became acquainted
Fibromyalgia. That's when I experienced with the International Disability
my first real encounter with its lethal Coalition and got into band,
effects. While at work, I wasn't doing strengthening excercises and virtually
anything too terribly physical. However, re-taught myself how to walk - without
it was the day in and day out repititions the help of any medical professional. I
of physical labor that not only added to also incorporated a 'mind-over-matter'
my condition but wrecked further havoc on attitude that I believe, enabled me to
me as well - and left me susceptible to step out of the wheelchair and back into
injury.On the Job InjuryThere I was, life.It's been about 3 years now, and I
performing my normal work activities still live daily with back, neck,
when, 'Ouch!' and 'Oh my God!' entered my shoulder and sciatic nerve pain. I
mouth. The pain was excruciating. Numbing sporadically suffer relapses where I
and impairing. With a simple maneuver, I can't walk, or I can't move my arms or
was incapacitated. Pain and tingling hands. BUT, I am no longer a walking or
numbness ran down my right side. It was wheelchair-bound zombie. I swim and
unbearable. Not only that, I could barely practice water exercises when the weather
make it to the office because I had to is warm to build muscle strength. And
drag my right leg to get to where I there are still times when my pain gets
needed to be.When I got to the hospital, the better of me and I still go through
I was told that "...you sprained your emotional ups and downs. And like most
back..." That was it. No MRIs, just a conditions, they flare up more often with
quick once-over to tell me that all my cold weather, emotional and physical
pain, my lack of feeling - according to stress, and lack of rest. BUT I am alive
workers compensation' doctors - was today, I am a survivor, and though I may
merely a 'sprained back.'I knew I had have fibromyalgia, Transverse Myelitis,
fibromyalgia, but it had NEVER acted in migraine, disc herniation, and restless
this sense. Not because I was 'weak,' but leg syndrome - these disorders do NOT
because my right side had gone totally have me.In ClosingLiving with my chronic
numb. It was frustrating to say the disorders and illness has taught me to be
least. Nearly 9 months after my injury, more patient...more loving...more giving.
and even working on light-duty while I now share my home with not only my
taking heavy pain killers, doctors human family, but have adopted several
FINALLY found that my right shoulder had rescue dogs - who I also compliment for
been subluxated (dislocated) and adding so much love and compassion to my
scheduled me for surgery. After the emotional wellbeing. And so long as there
surgery, I went through months of is a purpose on this earth for me to
agonizing physical therapy to get my exist, I will attempt to make the most of
right arm back into its proper range of it. Every hour. Every day.Living with
motion. But the numbness, the back pain Chronic Illness & Disorders: Are You a
and the lack of feeling in my legs still Survivor?
came and went without any signs of Copyright 5/2005 - All Rights Reserved
remorse.Shocking DiscoveryBy the time I by C.




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